Three Ways I Live with Chronic Illness

I was wondering how faith helps others to deal with chronic disease. My counselor recently shared a letter with me from an older woman who has dealt with health issues all her life. While very encouraging, I realized many of my things that helped me are different than hers. My top three are:

1. Practicing gratitude. Gratitude gets my eyes off me and onto blessings I receive even in the midst of the hardest days. Gratefulness helps me recognize God’s fingerprints in my life and produces joy not based on my circumstances. This blog post below shares how God gave me a vivid real life illustration of the difference of gratitude and joy vs bitterness, resentment and anger.

https://joyfulrefuge.com/2017/03/23/the-choice/

2. Embrace my chronic illness as ordained by God for both my eternal good and His glory. As I submit to God’s plan in my life, my character and faith have transformed so much since my health tanked. Knowing God allows what makes us grow the most like Christ to conform me to be more and more like him enables me to try to see life from an eternal perspective and see His hand at work rather than be bitter or constantly asking “why me?” (Roman’s 8:28-29) Embracing it as His plan also helps enable me to accept my disease and embrace the new and ever changing normal. When diseases progress or symptoms change causing more loss, I grieve the losses and process it and eventually embrace what God has done. I still have bad days and am constantly trying to balance my doing with the needed rest and lack of energy of my body.

John Piper had an article on this with a quote that so struck a chord with me.

3. Word Saturated and prayer. If I am not regularly in the word and in prayer (communication) with God I will drift in my thinking and attitudes. I need to preach truth to myself constantly. With my past it is easy to go into old thought patterns of how worthless, unlovable and wrong I am and go into fear and/or panic attacks. Counseling has helped me immensely. One thing my counselor told me is my negative thoughts on self and fear and guilt have made big ruts in my thought processes and I need to make new paths of truth thinking. I have verses on spiral bound 3” x 5” cards that tell me who am in Christ (Ephesians 1:4-10, Colossians 3:12 etc) and ones to help me with fear (Isaiah 41:10, Isaiah 26;3-4, Philippians 4: 6-8 and more). I have read a few times God knows we struggle with fear and that it is addressed 365 times in the Bible.

Adjusting and living with chronic illness is a daily even moment by moment process. Symptoms change, diseases progress but Jesus is the same yesterday, today and tomorrow. I constantly fail but so grateful I can run back to my Daddy God’s arms and He always accepts me, forgives me and loves me.

What has God shown you to help you in your journey with health challenges or trials?

Grateful for His loving grace,

Deb

Finding God’s Path for Me in this Crazy World

Recently I was pondering what is God’s path for my life in the midst of all this craziness of life with pandemic, divisions, racial tensions and shortages. What I ended up doing was compiling a list of verses that dealt with His directing me and helping me navigate through this life until I join Him in glory. I will stop writing and let God’s word do the rest of the talking. Pray you are blessed, encouraged and your hope renewed as you read these.

Psalm 16:11

[11] You make known to me the path of life;

in your presence there is fullness of joy;

at your right hand are pleasures forevermore.

Psalm 23:3

[3] He restores my soul.

He leads me in paths of righteousness

for his name’s sake.

Psalm 25:4

[4] Make me to know your ways, O LORD;

teach me your paths.

Psalm 32:8

[8] I will instruct you and teach you in the way you should go;

I will counsel you with my eye upon you.

Psalm 17:5

my feet have not slipped.

[5] My steps have held fast to your paths;

Psalm 25:12

[12] Who is the man who fears the LORD?

Him will he instruct in the way that he should choose.

Psalm 128:1

[1] Blessed is everyone who fears the LORD,

who walks in his ways!

Psalm 143:8

[8] Let me hear in the morning of your steadfast love,

for in you I trust.

Make me know the way I should go,

for to you I lift up my soul.

Psalm 143:10

[10] Teach me to do your will,

for you are my God!

Let your good Spirit lead me

on level ground!

Proverbs 2:20

[20] So you will walk in the way of the good

and keep to the paths of the righteous.

Proverbs 3:21-23

[21] My son, do not lose sight of these—

keep sound wisdom and discretion,

[22] and they will be life for your soul

and adornment for your neck.

[23] Then you will walk on your way securely,

and your foot will not stumble.

Proverbs 4:11-12

[11] I have taught you the way of wisdom;

I have led you in the paths of uprightness.

[12] When you walk, your step will not be hampered,

and if you run, you will not stumble.

Proverbs 4:26

[26] Ponder the path of your feet;

then all your ways will be sure.

Proverbs 20:24

[24]

A man’s steps are from the LORD;

how then can man understand his way?

Isaiah 30:21

[21] And your ears shall hear a word behind you, saying, “This is the way, walk in it,” when you turn to the right or when you turn to the left.

Isaiah 43:19

[19] Behold, I am doing a new thing;

now it springs forth, do you not perceive it?

I will make a way in the wilderness

and rivers in the desert.

Isaiah 48:17

[17] Thus says the LORD,

your Redeemer, the Holy One of Israel:

“I am the LORD your God,

who teaches you to profit,

who leads you in the way you should go.

Isaiah 55:8-9

[8] For my thoughts are not your thoughts,

neither are your ways my ways, declares the LORD.

[9] For as the heavens are higher than the earth,

so are my ways higher than your ways

and my thoughts than your thoughts.

Isaiah 57:10

[10] You were wearied with the length of your way,

but you did not say, “It is hopeless”;

you found new life for your strength,

and so you were not faint.

Jeremiah 6:16

[16] Thus says the LORD:

“Stand by the roads, and look,

and ask for the ancient paths,

where the good way is; and walk in it,

and find rest for your souls.

But they said, ‘We will not walk in it.’

Lamentations 3:40

[40] Let us test and examine our ways,

and return to the LORD!

Hosea 14:9

[9] Whoever is wise, let him understand these things;

whoever is discerning, let him know them;

for the ways of the LORD are right,

and the upright walk in them,

but transgressors stumble in them.

Ephesians 4:15

[15] Rather, speaking the truth in love, we are to grow up in every way into him who is the head, into Christ

1 John 2:5-6

[5] but whoever keeps his word, in him truly the love of God is perfected. By this we may know that we are in him: [6] whoever says he abides in him ought to walk in the same way in which he walked.

The Clean Slate of a New Year

A friend mentioned to me a couple of years ago how we have a whole new year ahead of us that is a clean slate of 365 days. He went on to say it is like a new snow before any footprints have made any paths.

Yesterday, I was pondering this as we had over 8 inches of new snow that fell. Each step I make in the snow permanently changes how it looks. I contemplated how each thing I do, every word I speak and each thought I think has the potential to change the vista in my corner of the world to either improve it or detract from it.

Father God,

Help me to ponder my paths and consider where I will go with my actions, words and thoughts. Enable my paths to be filled with sweet communion with You and falling more in love with You, Lord. May my paths be filled with love for You and love for others, as well as Your perfect peace, joy and gratitude. Lead me in paths that bring honor and glory to You. Please let me not mar my hours and days with the mud of resentment, bitterness, unforgiveness, what-ifs, ingratitude or selfishness. Instead, Lord, enable me to beautify my path by loving, giving, sharing, serving and extending grace to those You place along my journey through 2020.

Lord, I desire to be fully engaged in my relationships, in noticing others and recognizing their needs, by being awestruck by Your glorious creation as I walk through each moment You ordain. Deepen my appreciation of all of Your gifts, even the ones that come in the rocky, steep terrain of suffering or inconveniences of a suddenly changed course. May I fully trust Your purposes and rest in Your faithfulness that Your sovereign path for my life is for my eternal good and Your glory.

In Jesus Name,

Amen.

So as I look at our new snow, I notice where a bird or rabbit have gently, perhaps timidly, left their marks. I also notice the gregarious patterns left by my two dogs bounding joyously through the snow. I again ponder how at times the Lord allows times to gently walk one uncertain step at a time while other times we must boldly bound out enthusiastically and obediently where He leads. I pray God gives me discernment when to proceed slowly or cautiously and when He is calling me to boldly step out of my comfort zone. In reality, anywhere I am walking with God should be in my comfort zone.

I am asking the Lord to give me His ability to walk each step in 2020 with faith and confidence in my faithful, sovereign, good and wise God instead of getting off course with worry, inadequacies or fear.

Today I look with anticipation at the blank slate of 2020 and where the Lord directs my paths.

May you each have a wondrous and Happy New Year!

Blessings,

Deb

Count it all Joy

Count it all joy when you meet trials of various kinds. James 1:2 ESV

I am once again doing another Bible Study through Love God Greatly. They will be doing the book of James beginning Monday January 15. I got a jump start on it today and was studying James 1:2.

https://lovegodgreatly.com

After writing down the verse and my observations I began a word study. The first word I looked at was “joy”. As I went onto Bible Hub and looked at the Strong’s Concordance tab for joy this is what I saw

I think what really struck me is that joy in the midst of trials is not giggly happiness but the awareness of God’s grace and favor in the midst of it. How has he met me? As I recount the many graces He has bestowed on me, gratitude and joy well up inside in spite of the circumstances.

Remembering these things listed below and so many other ways He has shown His grace and favor upon me, cause true joy to well up in my soul and builds my faith. May they enable you to have the joy of recognizing His grace and favor upon you even in the darkest and hardest times.

– He gives me peace that passes understanding.

– He has promised to always be with me.

– He strengthens my soul.

– He has sovereignly ordained my days for His purposes to work out my eternal good and bring Him glory.

– He will help, strengthen and uphold me.

Blessings,

Deb

The Choice

Sometimes God makes His path so clear, even when the path goes through rough terrains we would rather not travel. God was so kind to give me a vivid illustration of the results of the choices before me when I was in the midst of being diagnosed with chronic illnesses.

two-paths

My health began tanking in 2009 which began a course of visiting numerous doctors and undergoing various tests to discover answers while my symptoms continued to worsen. In March of 2011, I went to yet another doctor who finally diagnosed me with Multiple Chemical Sensitivity (MCS), high histamine and blood test results that were indicative of some type of blood cancer. On March 30, I was told that my blood test results were way off the charts for a third time and that I would need to be seen by an oncologist who was also a hematologist. Being a former RN who does online research, I was fairly certain I knew that my diagnosis was going to be between “Big C”, an acute blood cancer that may mean only months to live or “Little C”, a chronic blood cancer that likely would not shorten my life expectancy but change how I lived it. We lived in the limbo of not knowing which from March 30 to June 7, 2011.

The vivid illustration God used about the choice I needed to make in response to how I faced whichever diagnosis, came about through a timely visit of our dear friends Earl and Nancy. Earl and Nancy spent two weeks in our home late March/early April 2011 and arrived days before my March 30th appointment. In fact they were waiting in the car with my husband as we swung by for my appointment on our way out of town to visit the Grand Canyon and Sedona, Arizona.

Nancy had her last radiation treatment days before flying down to visit us in Arizona where we lived at the time. In the months before their visit,  she had a mastectomy, chemotherapy and radiation for her second bout of breast cancer. Earl and Nancy sat in our family room recounting all the many ways God had blessed them and met them in the midst of Nancy’s cancer battle while Nancy cried tears of joy and gratitude.

In the same time frame, somebody we knew well, received the news that their spouse had dementia. This response was exactly opposite of Nancy’s. Instead they had responses of anger, bitterness and declaring their life was over and nothing good would ever happen again.

God provided a clear and obvious illustration of the choice set before me in how I would respond to the looming diagnosis possibilities. I could choose the better way, that realizes God’s sovereign hand and respond in faith with joy and gratitude regardless of what the future bought. Or I could choose to be bitter, resentful, angry and ungrateful.

After hearing the news at my doctor’s that my blood results would require follow-up with a hematologist/oncologist, we drove up with our friends to Grand Canyon. That evening we went to the vista point that was supposed to be the best at sunset. The colors were glorious and ever-changing. Standing on the rim of the Grand Canyon watching this amazing sunset I made my choice.

I poured my heart out to God silently as the skies and canyons blazed with a kaleidoscope of colors:

“Oh God, I have no idea what this diagnosis will be. Please, Lord, enable me, whether a few months or a few decades, to be fully present and soak up this gorgeous scenery. Give me the vision and heart to engage and appreciate all of life around me for all of my days. Oh God, one thing I ask, regardless whether it is BIG C or little c, please, please, let me be known as a woman of joy, gratitude and faith. Regardless of how I feel physically, Lord, let me be like Nancy who cried tears of gratitude and joy for all at You did through her cancer. Enable me to have Your joy and contentment and keep me from bitterness, anger, complaining or ingratitude. Remind me of these examples You have so clearly shown me and this choice whenever I am tempted to complain or be resentful. Let my life be a reflection of joy and my testimony be that of a woman who found joy and gratitude in whatever You have sovereignly ordained.”

My choice was confirmed when I first heard  with the song  Blessings by Laura Story and the story behind it on the radio a couple of weeks after my prayer at the Grand Canyon. The words of that song so resonated with me and that song still makes me cry. You can read the story behind the song here.

Later in April 2011, a friend told me about Ann Voskamp’s book One Thousand Gifts and I immediately bought it. In her book, Ann shares how she overcame tremendous fears and hurts by practicing counting gifts as she would journal things for which she was thankful. This book also confirmed my choice.  Ann Voskamp has continued to encourage me with her blog A Holy Experience and  more recent books.

My pastor asked me in early May 2011 if I would consider leading a ladies Bible Study for two months over the summer using the book Choosing Gratitude: Your Journey to Joy by Nancy Leigh DeMoss. By this point my hubby and I are almost finding it comical how many ways God was conveying and confirming my choice to ask God to make me a woman of joy and gratitude. I began leading this study in my home with about 15 women the second week of June as I began my first week of chemotherapy. It felt like a combo of early pregnancy, the flu and being hit by a truck the first three weeks on my daily oral chemotherapy until my body adapted to the chemo. Somehow God enabled me to be able to sit in my comfy chair in my family room and facilitate the group those first difficult three weeks. Other women lovingly served me by helping  with set up, snacks and clean up. God used those eight weeks of the study to further impact me as well as impact other women who attended.

I have lived out this choice much like a helpless baby bird who is unable to fend for itself. I was/am dependent on my Heavenly Father to tend me, feed me and strengthen me to walk in my choice. Oh there have been days where I pridefully challenged my Father’s wisdom by trying to convince God I would be more useful and serve Him better with full health. There have been times where self pity and complaining have been where I wanted to dwell. But my God has been so faithful to quickly remind me of the example I saw in Nancy and my choice. I repent and turn again to Him in dependence to enable me to seek Him and the joy that comes from seeing life from eternity’s perspective. When I try to live in joy in my own strength I fail miserably. When I am like Mary in the story of Mary and Martha in Luke 10:38-42 and spend precious time in His presence I am once again empowered by His Holy Spirit to rest in His sovereignty and faithfulness and see many things to rejoice and be grateful for in my life.

one thing necessary

I am so grateful for the lesson and choice God put before me early in my chronic illness journey. I have seen many benefits of my illness and how looking for ways to be grateful has helped me to recognize many I would have otherwise missed. I pray I will continue to remain and grow in my dependence on God for my source of strength, faith and joy.

count-it-all-joy